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Cystinosis

Many of you may be fans of Annie, and follow her blog, and Facebook.  You are probably aware of our deep love for sweet little girl named Emma Grace.  If you haven't heard about Emma Grace yet please let me tell you about her.  Emma Grace is the sweet daughter of a dear friend of mine, Shelly.  Shelly's mother Kathleen Starr of Starr Fabrics, has been a long time friend of Annie. They often team up and help each-other at Quilt Shows all across the country.  I met Kathleen while I worked the rounds on the Quilt Show with the ByAnnie team.  Shelly and her girls often accompanied there mom, and grandma and helped at the shows as well! We have become great friends. So you can believe that we were so sad to hear about the diagnosis of sweet Emma Grace.  This was taken from the GOFUNDME page...

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